Your Insulin Pump Proposals: What You Want the Manufacturers to Change

Also see "Results of Our Insulin Pump Survey", June 2007.

| Dec 14, 2007

To conclude our pump survey, we asked you how you'd like to see pumping improved. As usual, you came up with a plethora of intriguing suggestions, although some were a bit more visionary than others: One reader said, "I wish someone would invent a device that could be waved over a meal, and it would display the number of carbs in the meal."

We've not heard of anything like that under development, but maybe all the companies need is the idea.

Most of your suggestions were well within the realm of possibility. "All pumps should be waterproof," said one frankly frustrated reader. "The pump's a part of my body, you dolts! Do you think you would be able to sell a replacement knee that wouldn't go into a bath?"

Everybody wants something smaller, sleeker, cooler, and hipper, something like the visionary Charmr that was designed in response to blogger Amy Tenderich's call for diabetes devices with slick iPod-like styling. The Charmr is still just an idea-packed shell, but as a prototype to guide future developments, it might prove a guide for future designs.

Many of you find the thick instruction books daunting, and a remarkable number of you would like fewer features on your pump, or maybe a choice of beginner to advanced models.

You asked for larger screen read-outs with better contrast, a light that stays on longer, and louder alarms and beeps. And you want to be able to use different sounds for each message, with a choice of sounds that are more like ringtones on a cell phone.

Some of you, if you wear your pump in your bra or other concealed place, would like a remote control, maybe something like a wristwatch, on which you could read messages, clear alarms, and bolus. For those with remote controls, you'd like one that "actually works longer than a week."

You want a pump that can use the same insertion site as a continuous glucose monitor, because you're running out of real estate for the infusion sets. And you'd like to be able to leave your insertion set in longer because you "do not enjoy the changing hassle."

You also want an immediate alarm when the cannula comes out or is bent, even if insulin is still being delivered. "I have made mistakes priming bubbles through my set and then not clearing the screen, so no insulin is delivered until I notice my blood sugar rising."

You'd like to have a place to put your name and personal emergency information, such as your meds and personal contacts, on and in the pump. And you'd like a readout that tells the remaining life in your battery.

You'd like the ability to set a bolus to be given in the future, when you are in a meeting or otherwise occupied. You'd like the ability to dose in smaller increments, both basal and bolus.

Your biggest wish is for an affordable continuous glucose monitor that's integrated with your pump and can direct your pump's output of insulin. Of course, that's the dream of closed loop monitoring, and "that day can't come soon enough."

Here are some more of your suggestions:

  • I wish my pumps beeps were louder. I am a teacher and sometimes the classroom is loud. At those times I cannot always here the alarms to check my glucose. Also, I wish it would retain the numbers of a manually entered blood glucose reading.
  • An MP3 player :D
  • An error message for when the cannula is bent and insulin is not being delivered.
  • I am on an OmniPod and wish it had a built-in continuous glucose monitor. I also wish the pod itself was a bit smaller, but overall I am thrilled with the OmniPod - I had been on traditional "tethered" pumps for over six years before switching to the OmniPod in 12/06.
  • Cell phone, email, etc. An all-in-one device would be great.
  • Better customer service. For example, a broken pump took eight days to receive a replacement for. That is especially not good for a child. [I] lost faith with this brand of pump.
  • Larger insulin cartridge.
  • Ability to record when infusion set was changed.
  • I look forward to the advent of a dependable, small closed-loop system where the pump in combination with a reliable CGMS can regulate blood glucose levels in all conditions.
  • Faster infusion rate for bolus.
  • More memory to hold bolus history and carbs. A way to manually insert carb grams into the pump when you're not bolusing for them, like when you need to eat some carbs to raise your BG. Would like to see better CGMS systems that are more accurate, less trouble to calibrate and are covered by insurance.
  • MiniMed needs to provide better tape. I find that with perspiration, showers and swimming that my catheter can get dislodged easily, causing me to rapidly develop significant hyperglycemia and have to reset up my pump/catheter, etc. This is a real pain. I've found it helpful to use J&J tape to hold this down but don't feel I should have to, given the cost of these supplies.
  • Prefilled cartridges. PUMPING IS THE BEST!!!!!!!!
  • Carb calculating.
  • I wish the manufacturers produced the programming software in a Macintosh platform. Since they only offer it in Windows, we had to buy a used laptop solely for pump programming. Now it has died and we can't afford to buy another one, I can't do anything requiring the advanced computer set-ups. I can't even change the musical alarm and reminder tones.
  • Certainly, a continuous glucose monitoring system that does not require another infusion set would be beneficial to our young six-year-old boy. The site we have already is painful for him to get changed, although he quickly adapts, but to have another "tethering" is out of the question for us right now. I'm certain the pump manufacturers are working on this, and I am eager to see the outcome of the next phase of CGM.
  • Bluetooth so it can talk/listen to my PDA/phone. Integrated tubing management in the belt clip to take stress off the tubing/reservoir connection.
  • Larger display characters (readable without glasses).
  • A light on it so that when I use it the screen lights up. Currently, if I use it in bad lighting I can't see what I'm doing. By the way, I did not know what you meant by "crimping." If it's the infusion set not working then that is true, that happens quite a bit. No problems with the pump itself, though. Found it emotional going on it (hated having it attached to me all the time; made me feel clunky). But my HBA1c has come down, so it's worth it and now I feel much better about it.
  • Larger print - even with my glasses sometimes it's very hard to read. The "current reading" is nice and large but anything historical is too small to be comfortable
  • Get insurance coverage for CGMS. CGMS provides me the data I need (not want) to be able to really manage my diabetes and keep my A1c as low as possible without frequent lows.
  • I wish manufacturers had pumps of different levels. If someone has never had a pump before, then they should have a "beginner" pump with all the bells and whistles, to help train them on the correct way of dosing with their pump. As a person progresses with pumping, through the years, we don't want pumps that tell us what to do, from how much insulin to bolus for a high, to how much insulin to take with so many carbs. After 12 years of pumping and being over 50 years old, I know what I'm doing. I hope I can be on an insulin pump forever, after doing 36 years of injections and 12 years of pumping.
  • I wish the continuous glucose monitor was all a part of the same site as opposed to needing a different site.
  • Built-in continuous glucose monitor.
  • Have an affordable pump that checks b/s in one.
  • I have a Paradigm 512 and can't change the timing that the peak of onboard insulin is set for. I understand the later model does allow this.
  • Make the clip built into the pump like it used to be. After the first one I had, they started making them as an extra accessory and they break easily. I guess it is another way of getting more money.
  • A remote device for parents.
  • Since going on the pump I have had cataract surgery and I cannot read the screen w/o much difficulty. Visual prompts especially in the dark would be so helpful. I am unsure if there are options to add to ensure my insulin stays cool, as well options to protect my pump as I am very physically active.
  • I use the Paradigm 722 and I wish it had a carb dictionary of foods so that when I have something different I don't have to guess.
  • Smaller size. I love being on the pump. It allows me the freedom to chose when I eat. I no longer am tied to fixed eating schedules. I was so afraid to try the pump as I had a "routine" and schedule down pat. I am so glad I got over my initial phobia. Having it attached to me is no big deal. No different than wearing glasses!
  • More interactive features for blind people. The audio responses tend to be too soft to be heard when there is almost any kind of background noise.
  • The ability of the continuous glucose monitor to provide information to the pump and then the pump's ability to react with the proper insulin dosages.
  • Affordable, continuous glucose monitor
  • Multiple combination boluses, multiple bg reminders, easily-accessible insulin on board, better-looking design.
  • I love the flexibility of having a pump. I'm a woman and wish there was a better answer to conceal it. I no longer wear dresses; just too complicated. Some women don't use the pump for this reason. I play tennis and walk, but some who use a fitness center might find it a problem.
  • The pump does not allow the option of using just [a] one button push to determine what the current insulin [is] on board. TIA
  • I would like to be able to select the exact temporary basal I want rather than having to do it by percentage. That does not work for me because I have such a low basal rate. Therefore, I have to change my basal permanently then remember to change it back to the regular rate. I would have gone on pump therapy years earlier if I had had medical insurance. Pump therapy is too expensive for people without insurance. Many children in this area do not have pumps for that reason.
  • How about an infusion set combined with a continuous glucose monitor in one piece?
  • Better carb counting assistance.
  • Pumps have way too many features now, and few people use all of them. I think most of the features are marketing gimmicks. The only gizmo I really feel is great is the Cozmo "missed meal bolus" alert, which is why I got the Cozmo.
  • I wish there was a BG reminder option to set after inserting a new infusion set. Also I went on a pump in the late 1980s and have never gone back to multiple injections. Lantus was not yet on the market then. I used NPH & Regular - what a yo-yo life! Ugh! I also tried Ultralente and regular prior to the pump, but it was not a good situation either. So my main reason for going on the pump was to have flexibility in my lifestyle [so I would not have] to get up on [my] days off work to take insulin and eat at the same time as [I did on] work days, and not have to eat if I wasn't hungry or was too busy. My pump is my external pancreas and I wouldn't be without it!
  • Closed loop.
  • [An] out of insulin alarm. Louder alarms for everything.
  • I wish the MiniMed Carelink tracking was software-based rather than Web-based. Many people have privacy concerns regarding health information.
  • I often overlook that final confirmation needed before my insulin bolus is delivered. I'd like to be able to program that step out of my pump.
  • Louder alarms. Alarms when blood sugar is dropping rapidly instead of waiting for a specific number. Implantable.
  • Continuous glucose monitor.
  • Higher volume settings for alarms and more choices for different alarm sounds. Fewer steps to actually take insulin.
  • I am waiting to upgrade my pump when they have a model that will include the pump and the continuous glucose monitor in one unit.
  • Glucose monitor/pump in one.
  • There are so many features on the new pumps that few people use most of them. I have had type 1 DM for 43 years and next to the advent of SMBG, the pump has been the best thing to happen for the TX of my diabetes. I am a pump trainer and have trained about 400 pumpers. Lives have changed very positively for many people. I have been pumping for 11 years. I will not stop until there is a cure for type 1 diabetes.
  • Due to the fact that most insurance companies won't cover the sensor part of the continuous glucose monitoring, I wish the pump itself would have that feature on it. Without the sensor, I wish there was a way for the pump to sense the glucose readings and alarm the pumper when the blood glucose values are outside of the normal range.
  • I am looking forward to having the continuous glucose monitor and the pump be one unit. Going on the pump has been one of the greatest things for me (27 years of type 1) Life changing. It takes a bit of extra work to learn at first, but with constant testing, my A1c is always <6.3. I feel amazing!
  • Love being on a pump. Got my first pump in 1995 and on my third right now. Have been through two successful pregnancies and extensive traveling…all of which I wouldn't have been able to do so successfully without my trusty pump.
  • Being on the pump, my life has been more normal…no shots and the bolus wizard is excellent. This is more like living, being able to eat whatever non-diabetics eat, just figuring out the carbs. This is the only way to go!!!
  • Superbolus on my pump; predictive alarm on my CGMS; a semi-closed intelligent feedback loop that provides suggested modifications to basal rates and suggestions for corrective bolusing.
  • A built-in hook or clip so I can hook it to things without the added cases, or can hook it to [things] like key chains. And I wish all pumps to have a wizard to help give correct dose.
  • Blood glucose monitoring.
  • Connect with blood glucose monitoring, with the patient in control of insulin dosage and timing. Improved software for blood glucose analysis, combined with pump insulin delivery amounts and timing. This would assist patients with identification of patterns, and with their doctors' inputs make changes to insulin therapy.
  • I would like to be able to record my blood sugar reading without having to record it as a correction. So this way when I download my pump info I have all my reading with it.
  • Hi, I would like my Animas IR 1250 to have a larger food database and I would love to have 6-7 basal programs available for my cranky body. I love my pump and pump company in general. A color screen would also be tres cool!
  • The new sensor transmitter system.
  • Larger insulin sensitivity factor.
  • CGM
  • My pump does not adjust properly for a bolus when having a snack for a low blood sugar. Features for the vision-impaired.
  • I wish my pump would somehow be able to monitor my blood sugar levels.
  • I wish it were smaller. I hate wearing it but I do it anyway. I think it is bulky. I am very difficult to control and the pump has helped me maintain better control so I feel I have no choice. Not anywhere close to perfect but better. I want a closed-loop system, one that can determine my glucose level and proceed accordingly. I also don't want to be attached to a bulky piece of equipment.
  • A pump and a continuous glucose monitor all in one. Velvro tape clips you can stick to your body for the pump.
  • Monitoring blood sugar
  • I wear a Deltec Cozmo insulin pump. The Smiths-Medical Company has listened to requests from both patients and diabetes educators. Their latest pump upgrade has the ability to add a higher percentage of BG correction for BGs greater than 250, 300, 400, etc., a weekly schedule that can be set up, a therapy scorecard that shows average BG, number of BG tests, carbs eaten, basal, bolus, and correction insulin over a 2-14 day period, which makes diabetes management much easier.
  • Too many to describe. The manufacturers should consult users. They don't!
  • I wish that the bolus calculator stored the carb, dose and blood sugar used to calculate the dose.
  • Trends, blood sugar patterns.
  • We have the Animas pump that has carb counts in it but we find it very difficult to navigate. It would much easier to use if it had a search feature
  • The Cozmo screen is not easily read. The pump case should be constructed in such a way that you can wear the pump upside down - this decreases the chance of bubbles getting into the infusion line. If one is very sensitive to insulin and the TDD is small, even a small bubble causes problems! Proteins affect my BG values a lot. There is little help in judging meal bolus quantities given the protein and fat in foods. More studies should be done in this area and pumps should then help us figure out how much insulin to give for a meal with proteins and fats. The pump should also offer more help in deciding how this bolus should be extended over time. My ratio of insulin to BG level changes as my BG level is higher. This variable should also be possible to tell the pump. I have a Cozmo pump and I think it is very unfair that customers in the States get more service than those in Europe. In Europe we are not offered the new updated model or carrying case! Neither do they answer my questions about this practice!
  • Pre-filled cartridges.
  • Easier to read.
  • [I] wish [for a way] to go back in steps, especially when you make a mistake in the way you want the insulin to be delivered. And show that amount of insulin on display.
  • Continuous glucose monitoring through the infusion set. Anything that will produce better control.
  • I have an Animas pump. I think continuous monitoring would help me to greatly improve my overall health. But they also either need to make it more affordable or convince insurance companies to cover all or part of the expense.
  • At my doctor's office I was told the continuous glucose monitor was not available through medical insurance at this time, and it is very expensive.
  • Smaller continuous monitoring hookup.
  • For me it is hard to get more Humalog for the pump. I use too much and my insurance won't let me have more than a three-month supply. I can't use the continuous glucose monitor because they don't have it here and doctors do not know about it.
  • Just wish it could auto take my sugar and report it.
  • Most important…a closed loop. Also, the ability to detect if a high is a rebound or genuine, and then to adjust dosing accordingly.
  • Integrated CGM system. Better (and Mac-friendly) software. A better night-wear system. I use the armband for my iPod, which is okay, but not optimal.
  • CGM without an additional site.
  • The pump should (PDA on the OmniPod) vibrate in addition to giving a beep as a warning or alarm.
  • Calculating the amount of pre-meal/snack insulin needed when my BS is lower than it should be because I took too much insulin previously due to an over-estimation of the carb content of that earlier meal/snack.
  • Graphs on insulin usage.
  • I wish that someone would invent a device that could be waved over a meal and it would display the number of carbs in the meal. Carb counting is really carb guessing when eating out.
  • Less maintenance and more convenience. Fewer battery changes, fewer site changes, less filling insulin reservoirs, fewer calculations…
  • Automatic percent adjustment for specific situations (high BS going into a meal, BS above certain number).
  • Insurers should require mandatory standards for reservoirs and infusion sets. This would increase competition for the true "big money" items in pump therapy, because no manufacturer would be able to create a captive market for these horrifically expensive consumables. Oh, and all pumps should be waterproof - it's a part of my body, you dolts! Do you think you would be able to sell a replacement knee that wouldn't go into a bath or swimming pool? What's wrong with you people?
  • Larger font size. Better statistical summaries. mM pump has an annoying clip - I can't turn it 360 degrees. Women's clothing is not always useful - I have to cut holes in pockets of dresses. My biggest fear before going on the pump was that by only using fast-acting insulin I would be in danger of passing out from low blood sugars, but I have not had that problem
  • Volume for alarms, larger screen or text.
  • I am changing from a MiniMed to a Cozmore. The new pump came in today.
  • Better lock-out for kids, including a remote lock-out for when an individual has low BG and is not responding as they should (attempting to give additional insulin). Color-changing infusion sets that detect moisture underneath (would detect when infusion set has pulled out and insulin is not getting used.)
  • Love the pump but I've seen them all and they are all hard to see, unlike a computer.
  • If I did not bolus within a certain amount of time after checking blood sugar, the pump should send a sound and visible warning indicating that I had not. The ability to provide a basal amount of .25 units per hour would be helpful for me.
  • My Medtronic MiniMed pump has not only changed my life, but the lives of my family. I had horrible daily lows that caused extreme mood swings on top of that horrible "roller-coaster" effect of highs and lows. My kids talk about mom "BP" (before pump) and mom "AP" after pump. My A1c prior to starting on a pump eight years ago was 9.8 percent. The highest it's been since starting the pump was 6.4 percent and it has been in the 5 percent range for the last few years. I will also add this: The continuous glucose monitor (even with those great A1c's has improved my control even more. My A1c has been a steady 5.8% since I started using it last year. The difference - lows rarely below the 60's and very rarely a high greater than 160. It's been the greatest decision I've made in my life because it has effected every area of my life - for the better. Can't wait to see what lies ahead.
  • A database of carbs in various foods.
  • A way to calculate carbs.
  • But…Deltec will be sending out the new upgrade in a few weeks, free of charge. Deltec is the best meter I have seen. The only thing I would REALLY like is a waterproof, integrated blood testing insulin pump. Deltec Cosmo is waterproof until the blood meter is attached. Otherwise the system is great!
  • More miniscule dosing; for example, .01, .02, .03 etc. instead of .05 or 1.0. I am sure I will get better performance with tighter dosing.
  • I am so happy and feel so good since I started the pump!! I can't think of any improvements.
  • CGMS for my pump - Animas. Larger capacity cartridge.
  • Better displays for people with impaired vision. Just compare pump displays to an iPod Nano
  • Much less calibration and fuss. Less invasive glucose measuring.
  • Put something over the screen to enlarge characters. Advanced training on how to refine usage. A lot of the instructions instruct to "check with Health Care Provider" and their knowledge is somewhat limited. Carrying cases for adults (women) that are more user- friendly.
  • Integration of the monitor with the pump so that minute-t- minute adjustments can be made as to the amount of insulin.
  • Medic Alert sticker for the pump with personal info on it. No need for other ID jewelry since you "wear" the pump already. Make the Paradigm waterproof!
  • I wish that my glucose meter could "communicate" with my pump. The brand of meter that can "communicate" has strips that are non-formulary and my insurance won't cover them. Plus, that meter is far more primitive than the one I like to use. I also wish that the CGM sets weren't so expensive and were covered by my insurance. I wish my pump were a little smaller in size and that the infusion sets didn't have to be changed as often as they do. I would like different-sounding tones for the various messages the pump gives me - or to have a choice of what sounds I would like for each alarm. My pump has default tones and there is no variation other than length of tone.
  • Menu telling how many carbs are in certain foods.
  • A way to tell when the highs and lows are coming. Some type of sensor.
  • I would like a built-in continuous glucose monitor that actually works, is reliable and accurate. I tried the Medtronic continuous monitor with my MiniMed pump, and gave up on it because it kept shutting itself down due to "calibration errors;" [it] was never accurate, was difficult (and painful) to use, and was overly cumbersome (and very expensive).)
  • I wish the alarm were louder (MiniMed Paradigm). If it alarms during the night, I can't hear it.
  • 1. Constant backlight or one that will stay on for longer than 10 seconds or whatever time it is. It's not very effective as is (512 pump). 2. It would be a nice safety feature to have my name and personal emergency information easily accessible on the pump. 3. My doctor wants me to consider having the new Medtronic continuous glucose monitor system and I am giving it serious thought. The biggest drawback for me (besides whether or not my insurance will pay for it) is the fact that I would have to have two insertion sites. I love my pump but the insertion sites can cause a real problem sometimes, especially if you are thin as I am. There just don't seem to be enough places to rotate through over 30 days. Having to insert a new infusion set two, three or even four times every so often is very discouraging. It is still better than injections, though!
  • Tubeless. Continuous BS readings with supplies covered by insurance.
  • I use the MiniMed 522. I wish it had a database of carb values for all foods.
  • Total closed-loop system would be great. Unfortunately it is impossible to stop insulin from working once it is injected and artificial insulin is not as exact as that produced by your own body. Once this is achieved, a closed-loop system will be possible. The technology is here, the support chemicals are not.
  • Larger cartridge to hold more insulin.
  • To change the length of time my insulin is active. (This is available on the next upgrade from my MiniMed 512)
  • A complete history of blood glucose, carbs, insulin as given in chronological order, easily accessible from the pump menu.
  • Scratch-proof and larger screen.
  • Different correction rates based on the starting blood glucose. For example, if my blood sugar is more than 250, I use more insulin to bring it down.
  • Actually, fewer features would be better, then the instruction book wouldn't be so big. Also, after six years on a pump, even though my control is better, I have grown really tired of its presence (having to always be concerned about where it is, taking care not to pull out the infusion set during some physical activity - even tucking in my shirt - worrying about supplies, etc., especially when traveling out of the country). I am now strongly encouraging my doctor to allow me to move to one of the newer 24-hour flat-rate delivery insulins such as Lantus.
  • Allow me to individualize my basal ratings on a monthly basis to account for the need to increase and then decrease rates based on menstrual cycle.
  • Because of a hearing problem, I use the vibration as the alarm. The pump does not vibrate when the insulin reservoir is completely out of insulin.
  • Being able to future bolus depending on meals, not just square.
  • More information regarding the carb counts of food that I am eating.
  • [The capability to] sense an occlusion and alert or alarm me.
  • Alarm to set when it's time to check blood sugar
  • I have a MM 515 and wish it had a food database and had adjustable volume on the alarms/alerts.
  • New pumps are not as easy to use when you have problems with your hands. I have only two useable fingers on each hand.
  • A window showing the life of the battery that is left.
  • Remote control.
  • My pump's bolus calculator only will work if you count carbs only. My endo uses a nutrient counting system so I have a pocket PC and a program on it that figures my insulin dosage with all the formulas my endo recommends. I wish my pump had an option to figure bolus doses either way.
  • Easier to use remote control.
  • My diabetes type 1 was caused by an antibiotic, not auto-immune response. Rare but I am one of them! There is much published data about this out there. I am the victim of a bad drug company that allowed this to happen even when the effect of the drug was known when they first launched it.
  • Since I wear my pump inside my bra, it would be great to have a remote to read the messages/clear alarms/bolus.
  • Automatically set time/date when connected to a PC.
  • There has been and there always will be some way to improve control that has been left out of pump programming. A group like Sandia National Labs in Alburquerque should be writing the pump programs. Are there things and ways to make a better mouse trap? Absolutely. The real problem as I see it is the time that is taken to get the FDA approval for any change. To be careful is the right way to go but to take such a long time to find that the changes are OK is taking too long.
  • The pump has made living with diabetes much more tolerable. I rarely have the lows I had in the past. I don't feel guilty when I snack on something sweet however I try to do this rarely since I am always worried about weight gain. I have been a diabetic for 47 years and the pump has been the greatest improvement in its care. I am a world traveler and the pump has definitely made this easier. I don't understand why people hesitate with this decision. My sister has had diabetes 54 years, went on the pump eight years ago and after hearing her testimonial, I followed.
  • I would like to be able to download a combo of blood sugars and boluses from a single source of truth - either captured by the pump or by the meter.
  • I wish my pump had a built-in food menu with the carbohydrate information built in. I also wish it was waterproof.
  • 1. Something that tells me IMMEDIATELY, not five hours later, when a site has gone bad. 2. Something that would actually alert me when an air bubble in the tubing is going through me. (The "experts," none of whom use pumps, say that one should never get bubbles, and that they should be expelled as soon as one sees them. HA!!!) Or, coloring, like food colors, that could be used in insulin so that bubbles could be seen more easily. 3. An infusion set that didn't have to penetrate the skin, thus eliminating the problem of scar tissue.
  • 1. When using combo bolus and accidentally infusing an incorrect dose, the pump would immediately suspend delivery and figure out how to correct the error. 2. Bolus and basal delivery in 0.01 increments.
  • Food database with nutritional information; the ability to enter more foods and to make up meals.
  • At this point there is still a need to finger stick to test glucose levels and that's the main reason I don't use a continuous glucose monitor. They are not perfected yet. I am 51 years old and was diagnosed with type 1 at the age of nine.
  • Carb counting for normal easy foods, BUT I don't want to have to carry a PDA to look it up. I want it part of the pump. I would also like to see even shorter infusion sets with an updated glue that will stick.
  • That my Deltec would read my BD from the meter I use because the attachment they have for the pump has never worked correctly for me.
  • 1. Larger font - I had to start wearing reading glasses on a chain around my neck to have handy just so I could read my pump. 2. I'd like it better if the tubing connection didn't stick out of the pump so far. It sticks into my side every time I bend over.
  • Checks my blood sugar for me.
  • A time delay for disappearances of legend. I am slow with the setting process and I have to start all over again. Also or perhaps more simple, a back-step button.
  • Some way to determine strength of battery. No way to determine when it will sound a "low battery" warning. Some Palm Pilots allow users to see battery strength.
  • Smaller so that I can hide it easier. Also, I would like a feature that would allow me to keep all the tubing out of my way and let it out when I need more tubing.
  • Secrets. :)
  • Recording of all dosages and times for the previous 48 hours. Expiry time since last infusion set inserted. Indication that insulin is actually entering body. Reduction in pump weight and size. Assurance that security screens at airports won't pick up pump.
  • Allow the silence/removal of low insulin warnings. Allow CTL/ALT/DEL on night-time pump issues and reset pump till morning. We are much brighter in the morning.
  • Ability to add Symilin and Glucagon in with insulin; pump combined with CGM; pump and CGM able to communicate and suggest dosing changes; pump able to suggest changes to settings based on recent history.
  • 1. Louder alarm clock 2. All daily glucose readings - whether you inject insulin or not
  • Continuous glucose monitoring.
  • Sites that can stay in for a longer amount of time and require less changing. I do not enjoy the changing hassle.
  • Ways for you to get a new pump if your insurance will not pay for it and you cannot afford it. Also I think a continuous glucose monitor in the pump would be great.
  • Aside from complete integration with the all-too-expensive continuous glucose monitor… I will use Amy Tenderich's words: "In short, medical device manufacturers are stuck in a bygone era; they continue to design these products in an engineering-driven, physician-centered bubble. They have not yet grasped the concept that medical devices are also life devices, and therefore need to feel good and look good for the patients using them 24/7, in addition to keeping us alive." Why can't my pump be more like my iPod? Why can't I do easy, direct data downloads into a software package (iPump? Ha ha) that pulls together the data in the views I need to better manage my diabetes? The user experience is lacking. I'm tired of recording blood sugars and insulin dosing in an Excel spreadsheet.
  • Simple set up and controls.
  • Rather than a dual wave, something that would automatically add a dose two-three hours after to cover stuff like pizza. A smaller BG monitor that would still talk to my pump and that won't keep falling out of its pouch like the BD does.
  • Track information on BG and carbs.
  • I have been on a pump since 1984. It has saved my life. Features I would like on my pump: continuous BG monitoring; the ability to set a bolus to be given in the future (very handy when having a lunch meeting with a client - no need to interrupt the conversation to take insulin); remote controls that actually work for more than a week. The accessories are pretty awful. I'd be happy to be in a test marketing group that could make these things actually worth buying. The pump manufacturers need to test these items on real people! I have ruined more than one pair of expensive slacks (or a suit) because the pump cases have Velcro that ruins nice materials. (I no longer use any cases.) The pump holster made to wear with a skirt is horrible. I could go on and on…But I love my pump and am grateful forever for it. (My A1c's went from 12 and 13+ to the one I had yesterday: 6.5!)
  • I am 13 so the continuous monitor isn't used for kids much but I hope to use it soon. I will never go back to shots.
  • Constant glucose monitoring.
  • A great reduction in my A1c has resulted from aggressive pump therapy. It is work for me, but I feel a whole lot better. I've had Type for 41 years and a pump for six years.
  • A combined continuous glucose monitor and insulin pump.
  • Larger print, better lighting.
  • Not very pressing but: 1. Need for a set with ~30 inches of tubing (currently 23" and 43") 2. Some of the earlier pumps looked like pagers - now they look like medical devices (white and blue areas on pumps) and people wonder "what's wrong with him?" All else is very good with the pumps.
  • ASAP - please provide us with an accurate, simple, effective glucose monitoring system and pump, all in one - no more finger-and-elsewhere pricks and yet another item, such as a glucose monitor, to carry around. No more tubes in our pump or glucose monitoring system - all of it virtual, accurate, covered by insurance and very small. Since we do not have a cure, why not help us find an effective, simple system? Where is the high-end technology in the San Francisco Bay Area and what is taking so long???
  • Ability to bolus through clothing; waterproof; ability to check BG with same machine; light to stay on longer when pressed.
  • Log of all blood glucose readings - not just those associated with boluses.
  • CGM compatibility (right now I have an Animas pump and a DexCom); ability to review carb amount inputs on the pump rather than only after data upload to a computer; data management software compatible with Mac computers.
  • Have a meter to test the blood. There are other issues not mentioned here, like problems with site selection, and when bolus and basal occurs, and if the site is not accepting the insulin. I may not know that it until later when my readings are through the roof, and I have to start all over and select another site.
  • Wish it would give me my insulin as I need it when my BS rises.
  • I love the pump; it has been a great help in reducing lows and evening out my AC values. I am currently working on getting a continuous glucose monitor
  • Bigger size print; better contrast between background screen and printed text; smaller size - I use the Cozmo pump and wear the CoZmonitor attachment, which makes it quite thick.
  • My pump is set up to have continuous glucose monitor, but I can't afford it and insurance won't pay for it
  • One hundred percent personalization of the alarms and messages! A continuous glucose monitor included in the pump itself would be obscenely beneficial. A pump specifically redesigned for martial arts usage! (The belt clips do not function, nor do any of the "holster-harness" products.
  • Better screens.
  • I wish it could store health information in case I was unaware and was not able to tell anyone my medications, contacts, etc.
  • Diagnosed in 1964 with type 1. I have used a pump since 1996. It has dramatically changed my control of my diabetes and my life. I am without significant complications after 43 years. I'm an RN and have been a pump trainer since 2000. I have trained about 400 people on pump use. For those who learn and use the pump with intention of succeeding, many lives have changed in very positive ways. For others the only thing that changes is not needing to give frequent injections. We create our reality to a large degree and for someone insulin-dependent it takes work to not have diabetes rule your life.
  • I have a Deltec Cozmo with a Cozmonitor. I wish that these two technologies could communicate with each other to better regulate my blood sugars. That is, if the monitor caught an accelerating high or a dropping low, it could send a message to the pump to stop or start insulin delivery.
  • My son, age seven, (diagnosed at nine months) used Animas IR1000 for four-plus years, and just upgraded to Animas 2020. The new features are terrific and are helping us get better control. The pump is his choice over shots. It is more work, but well worth it.
  • 1. Louder alarm for glucose sensor. 2. Remote screen (like a wristwatch) to view blood sugar and even to enter boluses, etc. 3. Basal history viewable on pump for at least the last seven days - allows you to know what basal used when (such as when you changed patterns or used a temporary basal) and how it worked.
  • Adjust meal boluses when target blood glucose is WAY below the set target! Often, I can't take the full bolus amount due to severely low blood sugar, and I have to calculate the amount, then enter a different number of carbs to administer that lower rate. Confusing!
  • I have worn an insulin pump for 27 years. I was on conventional shots for only six months. a) Drop down menu for food b) It would be great if I could combine all my data: food, exercise, BGs, pre-menses symptoms. c) I would like to have a temp basal rate that I could specifically set for one week or 10 days prior to my menses. It would be great to just have #1 (base rate) and then have #2 (temp base rate) programmed in that I could just flip back and forth between every month. I become extremely insulin-resistant and require a significant increase in insulin seven to 10 days before my menses. How cool would that be?
  • Affordable CGM. Noise gate. Predictive alarm.
  • A closed loop, natch!
  • Smaller, MEMS technology.
  • When I use the bolus calculator it should store my carb and blood sugar numbers.
  • I would like a glucose monitor that is part of the pump and not a separate item.
  • Include continuous glucose monitoring in the pump. Make it totally waterproof. Make it less expensive.
  • Make it totally waterproof. Make it attach directly to the body to eliminate tubing sets. Incorporate continuous glucose monitoring. Make the pump and the sets and reservoirs less expensive. Make insulin less expensive.
  • Ideally, I would like there to be continuous glucose monitoring, and for the pump to be able to adjust the basal rate accordingly, i.e., work as an artificial pancreas.
  • I wish that CGM was covered by insurance. It would make getting one a no-brainer. I want to have a baby, and am now preparing to shell out $1,000 for the MiniMed CGM.
  • Look up active insulin without using the bolus wizard.
  • Larger font size.
  • This is an issue of the coordination of data. First, the date, time and amount of insulin. The basal and bolus flow. What was eaten, the amount and the carbs. Outside data. How many hours since the last inset change. Missing is the ability to measure the strength and potency of the insulin. Has there been a degradation and to what extent?
  • I need some information on the Accu-chek Spirit Insulin pump. I am using the paradigm 722 insulin pump at this stage. I am staying in South Africa, where can I get info on the Spirit Insulin pump? (Editor's Note: You can get information by going to this South African Web site: http://www.diabetes.co.za)
  • Patient choice for length of time of active usefulness of insulin i.e., four, five, six, seven hours. This affects true amount of active insulin remaining. I understand the new MiniMed pump addresses this.
  • The pump I currently use does not have a backlight.
  • Alarms that you can set for highs/lows. Better estimating for bolus when sugars are high. A pump like the OmniPod where you can put it on and have no tubing. But having a meter and dosing instrument separate is not a good thing - they're too easy to misplace, like a cell phone, etc.
  • Waterproof; smaller; bolus history screen easier to access
  • Not on the pump but in conjunction with the pump usage. I would like to see a better software program to analyze and chart my numbers with my Medtronic MiniMed pump. The software is NOT user friendly.
  • Bolus calculator.
  • There is a warning when the reservoir is low (20 units, and then again at 10 units), but there is NO warning when it hits 0 units but isn't yet empty enough to trigger an alarm.
  • When splitting a bolus because of delayed food absorption, to be able to programme the pump to do an amount of insulin now, and programme it to give the remainder at a specified time, so that forgetting the later bolus wasn't a problem. I use a Medtronic 712. Also, to have an alarm sound if the pump is left not delivering insulin for a certain length of time. I have made mistakes priming bubbles through my set, and then not clearing the screen, so no insulin is delivered until I notice my blood tests rising. An alarm after half an hour of no delivery would be good to avoid this problem.
  • Ability to turn off alarms with a remote. CGM that's cost effective and built into pump. Voice-enabled alarms.
  • I would like more information on how to program my pump. I can change settings but only a few of them. I want fewer "buttons" to push. I am ready to look at a replacement pump and these things will be included in my decision
  • Memory of foods I eat frequently so that I don't have to keep looking things up on the Internet and in books. GOOD software for tracking.
  • Much larger print.
  • More testing is needed to get the MiniMed continuous glucose meter insurance approved according to Independent BC/BS PPO of PA. (Yes I produced a week's worth of personal testing)
  • Using an Animas IR1200+, I want the ability to download ALL information that I put into the pump, the carb count for meals, the BG readings and then the resultant figures with IOB and what I actually dose. And then I do want a CGM. The pump IS more work, but it is worth it.
  • Ability to have alerts "turn off" after a given time of inaction by the user. For example a 2-hour blood glucose alert after a bolus (for example right before bedtime or an evening snack) during the night keeps beeping and beeping (all night) until the user turns it off. Many times it wakes me up along with my spouse.
  • Louder alarms as well as different alarm tones for different alerts. I wish my pump could dose in smaller increments (both basal + bolus) and I wish the time settings were more adjustable (insulin activity time, time increments for setting BG check reminders, etc.).
  • Entry of blood sugar into memory without bolusing. Food database. Factor in that a high BS needs a higher correction factor to bring it down.
  • I use an OmniPod. I wish it had the exact insulin amount left, instead of two days of "50+" signs and on the final day, the exact amount left. Also would like a computer/software program to download the PDM that comes with this pump. It would save writing all of my numbers down. With other pumps, there needs to be more and better devices to put the pumps in, at times hidden, when wearing "waistless" pants, dresses and skirts. And all should be remotely accessible.
  • I know people are working on having a sensor and the pump being able to automatically adjust, that day can't get here soon enough for me.
  • Food database of some kind. Louder audible alerts/alarms.
  • Wish you could upgrade all pumps to the newest pump available to stay current, especially if they have been under warranty all that time. I did not get any pump training when I got my MiniMed pump and that is wrong. I wish somebody would set up the downloading for me. I have no time to spare to do this and am not computer literate. Wish pumps were Bluetooth. [You] could then have reminders that you did a glucose and didn't bolus, did you eat? Or you have now bolused four times in the last hour and may be going low from insulin on board. I'm sure there are others.
  • Integrated CGMS system with pump. Larger capacity cartridge. Wireless data transmit from pump to desktop computer.
  • Automatic insulin to blood glucose regulator (pump should sense body's blood glucose and automatically dispense insulin accordingly).
  • 1. Connection between BG meter and pump for insulin dosing with patient controls incorporated. 2. Less costly.
  • An option to get a line pressure to give some indication of what is going on at the cannula before an occlusion alarm goes off. More accuracy in the remaining insulin number (units remaining).
  • Longer infusion site life. Three days is too short.
  • Reading my blood sugar and delivering insulin without me having to estimate how many carbs I'm eating. Actually be a pancreas outside my body.
  • GPS/Internet Access/games.
  • Better waterproofing; volume control for alarms; universal insulin cartridges/tubing.
  • Brighter backlight. Pump data software for Macintosh OS X.
  • Easier-to-read screen, waterproof pack, smaller set catheters for kids (my son is four), occlusion alarms that are immediate, ability to see a visual on the screen to tell us it is giving the basal rate. Wizard to suggest rate and bolus changes based on current settings/trends/blood glucose readings.
  • Smaller size, bigger memory.
  • They should cost less and the required supplies should also be less costly.
  • More direct access to "insulin on board" status. Bolus calculator that takes into account over-bolusing and suggests amount of carbs to correct.
  • Food/carb database. Waterproof.
  • Wireless BG readings for Animas.
  • Better wearability/smaller.
  • It would be nice if they had a carb counter and a place to put the carbs of my favorite foods for a quick reference. I would prefer to have a tubeless system but the OmniPod needs to have a port system like the Paradigm 722. I'm very active and remove my pump during very physical activities. The pod could be pulled off too easily. I also would like to have a continuous glucose monitor.
  • My MiniMed 715 does not give a measure of insulin on board, which I feel would prevent my lows as I do frequent blood sugar checks.
  • Warning for bubbles. Warning for non-delivery. More number of days data storage for bolus history. Facility to download bolus history on my computer.
  • Continuous glucose monitor.
  • Blood testing monitor.
  • A CGMS and pump all in one.
  • Waterproof. Adjust the time the insulin lasts (my pump is three years old; newer versions allow this).
  • I wish my pump could measure my sugar reading so that I wouldn't have to worry about the cost of the glucose meter supplies.
  • Vibrate and beep together.
  • I am using the Delta Cozmo pump and I don't like when I have to change the battery. When I install the new battery the pump keeps cutting off and on because of the monitor that is attached to it. And also I don't like the belt clip or the tube that everyone can see. Wish there was something a lot better than that, especially where you cant see the tubing. But I do love my pump; it helps me a lot.
  • More detailed combo bolus history, including carbs eaten at the time of bolus. Recommended # of carbs to eat when dealing with a hypoglycemic instance. A reminder option that can be set for an upcoming day, not just today. A built-in calendar. An address book for doctor's contact info, appointments, etc. More accurate CGMS (I know these are in the works). Wish pump companies could tell you what improvements are in development before we decide which pump to get when the current pump warranty expires.
  • Built-in blood meter.
  • CGMS.
  • An affordable continues glucose monitor that works with and is attached to the pump.
  • I have worn an insulin pump for 14 years. I wish I would have gotten one sooner. I tell people now that the only way I will ever come off of my pump is if I'm dead or there is a cure for diabetes.
  • Availability of Macintosh-compatible software for programming would make my next pump purchase a 100% done deal. Pumpers without Windows boxes don't have the advanced programming options available to them and that stinks!!
  • A reminder to change my sets and a brighter display.
  • Better adhesive.
  • A built-in list of foods and their carb count. A way to note when you start an activity, such as exercise.
  • Functions on insulin pumps are changing all the time. I do look forward to when CGM is accurate and the need to finger-stick test will be gone. Although I love the small size of my pump (Animas 1200+), I often wish I had a number keypad instead of the up and down arrows.
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Categories: A1c Test, Blood Glucose, Blood Sugar, Diabetes, Diabetes, Food, Insulin, Insulin Pumps, Lantus, Losing weight, Professional Issues, Type 1 Issues


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Comments

Posted by Anonymous on 13 December 2007

When I can order?

Posted by Anonymous on 14 December 2007

There's got to be something better than attaching a needle into your body and leaving it there. Its a terrible pain in the side and I cringe at the thought of a pump. I am diabetic but do not use the pump. I take insulin shots maybe 2 or 3 times a day. Thats reasonable. I think people ought to take life easier, enjoy their lives and not be so preoccupied in dealing with their condition. I think diabetics should surely but gently take care of themselves, and not be sooo uptight.

Posted by Anonymous on 14 December 2007

Typically, there is only a small plastic cannula left after the insertion which is more comfortable. The pump is the way to go!

Posted by Anonymous on 14 December 2007

You need to look again! You don't leave a needle in your side (or any other place for that matter). The pumps now leave a flexible catheter under the skin which is usually undetectable by the wearer. Get yourself to a diabetes educator (preferably one that is part of an ADA recognized program) and find out about all of the new products out there! Things are changing almost on a daily basis!

Posted by Anonymous on 14 December 2007

I'd like to see a pump with the ability to store 2 or 3 basal rate regimes. The difference
in insulin requirements when physically active,
when not, or when ill now requires that I reset basal rates for each.

Posted by Anonymous on 14 December 2007

Insulin pumps seldom hurt, when "attaching" them, anymore than the occasional hitting a nerve/vein, with a needle taking an injection of insulin. I've had diabetes 48 years and at this time have no complications. If I took the "gentle" approach as one anonymous person said, I'm sure I would have some complications by now, if I were even still alive. I love pumping and I have much better blood glucoses and HbA1c's, then when I injected insulin for 36 years. I don't mind have a cannula (not a needle) attached to me.

Posted by Anonymous on 14 December 2007

First, when on a pump, the needles does not stay in the body; a tiny thin plastic cannula is inserted and stays in the body. I've been pumping for a year and have been diabetic for 31. Once I knew all the facts of pumps, I won't change now. LOVE it.

Posted by kmcmahon on 14 December 2007

Did you already publish the entire list of suggestions shared?

Posted by Anonymous on 14 December 2007

1. There hasn't been a needle staying in my skin for years--since the first models. 2. The pump HELPS me take life easier. and of course
3. a closed loop system WOULD BE WONDERFUL

Posted by Anonymous on 14 December 2007

It would also be wonderful for those parents with diabetic children to have a device (pager) that alerts a parent when their child has either not checked their bG level in a while or the level hits a certain threshold that is user configurable. This would be especially nice when the children are at school and we all know that most school nurses and dieticians are not as aware of diabetic care as those with diabetes or the parent of a child with diabetes.

Posted by kdommer on 14 December 2007

The Minimed Paradigm allows you to have your typical basal setting and two alternates. I use it for various reasons and it is wonderful. This pump, in general, is wonderful!

Posted by Anonymous on 14 December 2007

type 1 x 34 years & a pumper! I am also a RN & pursuing my CDE. Animas is the only pump on the market that is submergeable in water & it also has the smallest increments on basal rates. Animas also has 4 basal settings, in which you can also vary each one in time frames. In regards to the anonymous writer above, the pump does make your life easier, as it allows more flexibility, not to mention better control. Being an advocate for your overall health and your diabetes in a vital part of life.

Posted by Anonymous on 14 December 2007

The pump is AWESOME, but I echo the deire for more intuitive physical design. It needs to be worn discretly, next to your body ... it would be nice if it one were actually slightly curved or made with a 'gel' like surface that moulded to the shape of your hip. Square and boxy (the current design paradigm) ain't ideal.

Posted by Florian on 14 December 2007

I would like a pump with an "Easy Button"

Posted by Anonymous on 14 December 2007

I cringe when I see a statement like one of the earlier posts, "I think people ought to take life easier, enjoy their lives and not be so preoccupied in dealing with their condition." If I wasn't so preoccupied with my condition, I could be on dialysis, blind, or missing some limbs. I have had Type 1 diabetes for 40 years and have been on the insulin pump for 20 years. Yes, it was a pain in the side when in the early days when your only choice was a metal needle, but for quite some time the plastic cannula's have been available, and are extremely comfortable. Before going on the pump, I had laser surgery 3 times for diabetic retinopathy, which has been reversed since going on the pump. I have not had a retinal bleeder since being on the pump, no signs of neuropathy or kidney problems. I have recently started the continuous glucose monitor, so I guess I am even a little more “preoccupied” with my condition. I feel that all that “preoccupitation” is helping keep me complication free and I will continue to use the tools available to me to hopefully live to be old and healthy and die of something other than a diabetes complication.

Posted by Anonymous on 15 December 2007

My 20-yr son has been on a pump since shortly after diagnosis 18 months a go. He's currently taking a break from his pump and giving himself shots. He loves the freedom of not being attached to the pump at night. Last night he said he just turned and turned because it felt so good. He even turned multiple times in the same direction. Something I guess that isn't the easiest with a pump. So how about a nighttime insulin shot that allows you to be unattached from your pump at night.

Posted by Anonymous on 15 December 2007

I have been using a pump for a while and am very satisfied with it. Surveys like the one you reported add little or nothing to improvement of the product. That can only be done if the manufacturers use the pump users for suggestions. In order to induce them to participate the manufacturer could give some incentives to the pump user who partcipates. To me there are only three important milestones to be reached:
1. Integration of an accurate pump and Continuous monitoring device.
2. Some way to take the BS reading without the lancet.
3. A functioning software that provides statistical information rather that junk info that the pumps provide or the CGMs provide. What good are the graphs without any statistical info? And they collect mounds of data which is stored in the device but process it like grade school children. Perhaps we need a data mining assistant to ferret out the info.

Posted by Anonymous on 15 December 2007

I was apprehensive about pumping....but it has changed my life!! My life is now mine!! I would never stop pumping. It is very easy but you can make it complicated if you use all the fancy features. A healthy pancreas continuosly pumps rapid acting insulin..and the pump does too. It is THE MOST Natural way to go!! Happy Pumper for 13 years and person with diabetes for 32!!!!!!

Posted by Anonymous on 17 December 2007

I'm type 1 for over 8 yrs and have had my pump almost 2 yrs. My pump (animas 1250) has made things SO much easier for me. No more trying to figure out boluses with IOB (insulin on board) from my last bolus because my pump figures that in the suggested bolus. No more 6 or more shots a day. When I am active, I just set a temp basal to decrease my insulin - usually by 20% and it jumps back to my original setting when the amount of time set is done (can choose anywhere from 1/2 hr to 24 hrs). My pump also has a clip that allows the pump to turn at any angle - completely upside down if I want so sleeping with it isn't a bother. There are many pros than there is cons but pumps aren't for everyone so the best thing to do is try it and if you don't just go back to shots. :)

Posted by Anonymous on 17 December 2007

In regards to your son "turning and turning" b/c he finds it difficult to turn when sleeping with the pump...he may want to try using the longer tubing (43") and place the pump under his pillow at night. I do that and then I lay on top of the tubing, that way, I can turn and turn and not have a problem with getting caught up in the tubing. Just FYI.
In regards to the responses re: the "hassle" of pump therapy...do a little investigating and you may find that the pump actually makes life a lot easier!!!!
If you are having any problems or are uncomfortable with your pump, ask your pump trainer or Certified Diabetes Educator and you may find there is a solution!
Insurance companies and pump companies will pay for you to have follow-ups with pump trainers. It is anticipated that certain questions will come up that need to be answered. Don't assume there is not an answer.
All the pumps can store multiple basal rates, none of the pumps require that you wear a needle under your skin, and the Minimed "Guardian" allows parents to monitor their children's BG while they are sleeping.
Micki Hall MS, RD, CDE, CPT

Posted by robinconway on 18 December 2007

My wish is that the device makers would build what we need rather than trying to make us need what they have built.
In order to achieve optimal glucose control we need a pump that integrates glucose monitoring results with insulin doses and food intake. Data interchange between the pump and the meter needs to be automatic through wireless or Bluetooth Technology and we should have an open standard so that we are not married to a particular technology that may not suit us. Pump and meter downloads should have open common standards. While different insulin pump companies all have diferent solutions to common problems, they all involve proprietary software or communication protocols. Mini-Med has a proprietary RF link that only works with one glucose meter, Roche/Disetronic has a pump that doesn't talk to the meter but both will communicate with a Palm device (as long as you use a Roche Meter). Animas is owned by a meter company but the pump doesn't communicate with any meter! COZMO talks to only one meter. Can someone not give us the open transparent system that we need? Why not a Bluetooth Pump and a Bluetooth Meter?

Posted by Anonymous on 18 December 2007

I've had an insulin pump for about 3 months now. Often times I check my blood and enter it into the bolus wizard and because my insulin sensitivity setting the wizard will figure out that no insulin is necessary, though my blood may be running a bit high. I thin a useful feature would be to have that BG value entered, stored in the meter, despite not delivering any insulin. That way your pump will have both the BG's and insulin delivered for that BG, I.E. boluses for meals, but it will also store random BG's you take during the day that don't require any insulin. Then you wouldn't need a pen and paper to log all your BG's.

Posted by Anonymous on 27 December 2007

I have been type 1 for 13 years and worn a pump for 4 years. I love it. My A1C went from 6.2 to 5.5! I think the glucose control is excellent. My only complaint is more for the insurance companies-(I wish more would cover continuous glucose monitoring systems). I think the insurance companies would save more money in the long run if they would cover diabetes supplies to prevent conditions like dialysis, neuropathy, blindness, and amputation than the condition itself.

Posted by Anonymous on 26 January 2008

I'd like to see standards-based communications protocols (WiFi and TCP/IP would be great; bluetooth less so, but still better than the proprietary nonsense that comes with all current products) and open-source software for managing data. The pump and meter companies are _not_ in the software sales business, and shouldn't be acting as if they are. They should have no real interest in tying up everything under proprietary covers, and opening it up would allow ports for Mac, Linux, BSD, Solaris, and others. If I could get one message to the manufacturers, it'd be this: many of us do _not_ want to run Windows!

Posted by Anonymous on 5 February 2008

I am on a Minimed pump and Love IT!! I considered other pumps but am highly interested in the technology and the CGMS feature with this pump. It is expensive but more payors are coming on board. United Health Care Nation wide has begun paying for RTS. Also I see comments on wishing the medtronic pump was water proof. While it is true that other pumps claim waterproof, if you read the fine print it states that if a pump gets a hair line crack in it then it is no longer water proof. That can happen without you knowing it!!!

Posted by Anonymous on 20 February 2008

My son has just switched over to the pump. He is complaining of a burning sensation when he boluses. Has anyone experienced this and what can we do to solve the problem? Help!

Posted by Anonymous on 21 February 2008

I occasionally notice that, depending on where my site is at the moment. The way that has been explained to me is that the pH of the insulin doesn't match the body's pH, so you feel a little bit of burning (like getting lemon juice on a cut).

If it's intolerable, you might experiment with different forms of short-acting insulin, as there are several on the market (humalog, novolog, apidra). But you have to be careful, because those different insulins may also have slightly different effects on blood sugar. The easiest solution is just to deal with it - if it's not all that bad he may find that the sensation goes away as he gets used to it.

Posted by Anonymous on 11 March 2008

Has anyone experienced a problem with their medtronic mini pump dispensing the correct dosage? If yes, what did you do to resolve the problem.

Posted by Anonymous on 21 March 2008

A method to power/ switch the Pump off. I do not wear the pump when travelling by air, but when packed in my bag, it continuously beeps or vibrates attracting attention from the TSA folk. Also a two button method to lock the keypad rather than having to go through the utilities menu - I use a Paradigm 722.

Posted by Anonymous on 29 March 2008

I would like a temporary basal history, like the bolus history. Once the temp basal is done, there's no way of knowing, unless it's recorded separately, whether the chosen adjustment was the right "guesstimate." Being able to check back would be very helpful.

Posted by Anonymous on 8 April 2008

my son is getting a pump soon, any comments on which one is the best overall?, he really wants the new Omnipod(no tubing), but it is not yet available to us(insurance) so we are leaning towards the Animas or Minimed

Posted by Anonymous on 3 May 2008

It would be nice to have a glucose pump for type 2 diabetics, because it is very difficult to fine-tune the blood glucose level just with medication, diet and phisical
activity. Even if you have a continuose glucose monitoring system, when you hear an alarm it is already too late. When you have
low glucose level you don't know how much glucose you have to "eat" and how fast for your weight and current physical activity
not to take in too much and too fast to cause "overshooting" of blood glucose level.
Glucose pump could at least prevent low blood glucose level when you get too busy and forget to eat. Even for type 1 diabetics
a glucose pump together with insulin pump could be the most ideal system.

Posted by Anonymous on 22 May 2008

My 21 year old son is on the omnipod. It is geat excet that it would be so nice n to have to carry around the remote in addition to his phone or blackberry. With all the software and computer technology, you would think they could sync it with a blackberry therefore reducing the amount of paraphernalia one has to carry around. He doesn't like to carry a bag so his pockets are overstuffed between the remote, blackberry, meter and strips he needs with him.

Posted by Anonymous on 6 June 2008

For all those out there wanting a carb counter in the pump - I wear an Animas pump and it has a carb database in it...BUT guess what - I NEVER use it...too many buttons to push. Do yourselves a favor and get your diabetes educator to teach you how to carb count....it's easy to do and that way you dont have to sit there pushing 25 - 30 buttons to program your food. Also...highly recommend the Calorie King booklet (available at any bookstore) - much easier to look things up and I carry it in my purse

Posted by Anonymous on 24 June 2008

I began with Disetronic (now Accu-Chek) in 2001. Out of all pumps out there I was impressed most with "pre-filled glass cartridges," which have now been substituted out. Plastic worries me. I want pre-filled glass cartridges back.

Posted by Anonymous on 24 June 2008

I was diagnosed with Type 1 in 1966. I began pumping in 2001 with Disetronic (now Accu-Chek). I ruled out all other pumps because "pre-filled glass cartridges" were available. Now glass cartridges have been substituted with plastic in new Spirit pump. Duration of insulin in plastic cartridges worries me. I know my concern is legitimate because no one wants to address it. Accu-Check (Disetronic) bring pre-filled glass cartridges back. It's important!

Posted by Anonymous on 20 July 2008

I use the Medtronic MiniMed 722 and it DOES have many of the features previously posted as "wants". It gives me all the info I need before I pump: the amount of insulin needed to cover the carbs that were "beeped" into it from my glucose monior or entered by hand by me after checking bs with another monitor. It tells me how much is needed to cover the carbs I will be eating, how my insulin is still active in me since my last bolus, what my basal rate is at that time, and it subtracts any active insulin from the amount needed and I am doing marvelously with it! I know there will be other features added in the future, but I am just so thankful that I have the pump available to me now and instead of A1C of 8 or 9, I'm regularly between a 6 and 7 now!

Posted by Anonymous on 1 September 2008

It would be nice to see a manufacturer come out with a pump that incorporates a call out feature into the alarm system on the pump.
If someone actually goes into a low or high blood sugar reaction, a phone system via satellite could call out EMTs as well as some family members. I know this is a long way out but if this came out, myself as a son of a diabetic mother would feel much more secure about leaving her home alone. I work with a similar call out system that sends me text messages on my phone when a warning is posted. Anything is possible and hopefully someone much smarter than me can come up with a call out solution. Even if an emergency dispatcher called the house when an alarm went off would be beneficial.

Posted by Anonymous on 4 November 2008

I have a MiniMed and a Mac. I just wish they would work together.

Posted by Anonymous on 27 November 2008

All three types of animas pumps that I have had are damn junk.

Posted by Anonymous on 15 December 2008

I would like to see that pump makers warn doctors, pharmacists, xray tech/doctors that there could be damage to our pumps from xrays, CT scans, MRIS ect and maybe even Ipods. I have had so many xrays,ct scans and tests this year and the employees always tell me xrays are safe with the pump. Even the FDA had warnings this year not to have a pump on with xray tests.

Posted by Anonymous on 15 December 2008

I agree, Since August I have had two animas 2020 pumps. My first one never worked right and I almost died. This one I am wearing now is OK but the insets never seem to work. I have to go through two or three at a time to find one that gors in correctly and stays in. The tubing is junk, made in Mexico, and when you call Animas, they defend this junk and make you mail it back before they will replace them. I must call them every week. They do not seem to be nice anymore.

Posted by Anonymous on 28 January 2009

Has anyone heard of an amplification devise to stick on the omnipod and make the alarm sound louder?


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