New Yorkers, Speak Up! The Fight for CGMS Coverage Continues

Jul 25, 2008

If you are a New Yorker and have been denied CGMS coverage by insurance or would like coverage for a continuous glucose monitoring system, Gina Capone, founder of Diabetes TalkFest, wants you to Raise your Voice.

The rest of us should watch closely and participate by signing online petitions because if CGMSs are included on the list for mandatory insurance coverage in New York State, perhaps other states will follow suit.

Assemblyman Sweeney said that when he drafted the NY State mandatory insurance coverage diabetes laws, it was positioned as such that the NY State Health Commissioner, at his discretion, can add to the existing law, any diabetes product, medicine or technology that he deems necessary to be mandated for coverage by insurance companies. He does not even need an act of legislation, he can merely add to it.

Assemblyman Sweeney has contacted the Health commissioner asking to investigate if the CGMs warrant full coverage by insurance companies.

Capone wants all New Yorkers to send letters via “snail mail only” directly to the NY State Health Commissioner to let Commissioner Richard Daines know that you support his correspondence with Assemblyman Robert Sweeney to include CGMSs in the list for mandatory insurance coverage in New York State.

Capone’s site gives the mailing address as well as sample letters. Check it out and Raise your Voice.

Click Here To View Or Post Comments

Categories: CGMs, Diabetes, Diabetes, Government & Policy, Insulin, Lobbying, Politics, Type 1 Issues

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Posted by dorisjdickson on 25 July 2008

I don't believe CGMS, as they currently are designed, at their current expense levels and inaccuracy are the cure all. CGMS's are as inaccurate as glucose monitors plus some. They have a 20 minute delay and are therefore only useful for trending. You still have to test blood sugar.

There are plenty of other less expensive techniques (for most people) that can equally achieve safe normalized blood sugar without the inordinate cost to the insurers and thus, to the insured - everyone pays the increased premiums, not just the user.

So, as a 15 times a day tester, who uses small amounts of insulin in 12-15 injections per day and attains a consistent, safe A1C of 5.1 - I say no. I will not advocate for increased CGMS coverage.

Posted by Anonymous on 25 July 2008

Actually, it was never stated that CGMs are a cure all for diabetes. It is a tool that will help a lot of people achieve better management of their diabetes.

So I guess when the cgms is covered by ALL insurance companies you would not want the best possible tool to help you manage your diabetes better?

You have a great A1C and obviously work very hard at your diabetes care. I commend you for that but their are a lot of people that can not such as myself. I have been trying for the past 7 yrs to get lower than an 8. I am in contact with my diabetes team, I check my blood 12+ times a day.

I wore a CGMS for ONE week and with the data it provided me and my diabetes care team we were able to see trends from food and stress levels and when i go to the gym that have been crucial data.

It gave me piece of mind while wearing it because of continued hypoglycemia I was having during the gym. I actually saw the trend of numbers going down while i was on a treadmill on my pump chart. I was able to start treating BEFORE I was in a dangerous level.

You are right though, the CGMS is not a cure all for diabetes. It is not a perfect machine. NO machine is. It is your right not to advocate for CGMS. but there a lot of people that would like this covered, and as a member of the diabetes community I will support any cause where I feel we need to come together to help each other, even if I agree or disagree.

Community. We raise our voice together, we will be heard.

Posted by Anonymous on 25 July 2008

I just say its a great thing for the congress to pass the bill and able to support a nobel cause of finding cure for one of the invading diseases.

Looking at the first user's comments, ONE need not test 15 times a day, to attain good A1C, it will definitely scare people if they read that and will give negitive information for newly diagnosed people.

I am Type-1 and have been maintaining consistent A1C of 5.2 over two years, with 4 tests a day and 4-5 injections per day.

I attain all of the above without ever trying hard to maintain my BG level.

It will vary from person to person and the main thing is to balance diet and exercise and also have a bit of anticipation and positive attitude towards life.

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