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Because we have good health insurance, my son sees his endocrinologist twice a year, his diabetes health educator twice a year, and his nutritionist once a year. Meanwhile, he sees his school nurse one to three times a day. As you know, this relationship can make a difference for the rest of a child's life.
This is how I begin my talks when I am speaking to school nursing groups.
Then I ask, "How many children with diabetes do you have in your care?" and I start counting, "One? Two? Three? Four?" When I first did this several years ago, nurses stopped raising their hands at around four. At my last diabetes conference for the Massachusetts School Nurse Organization, several hands were still up when I reached seven.
Not only are school nurses regularly interacting with our children, they are increasingly in charge of many children; some have pumps, some have continuous glucose monitors, some have oral medications, some have very involved parents who want a phone call every day, some have parents who don't answer the phone.
At the same time, school districts are cutting costs by reducing school nursing hours. In California, some nurses are responsible for as many as 5000 students, so if your child has a full-time school nurse, you are lucky.
This nurse-student relationship can be a profound support for your child. Over the years, Danny has had three school nurses, and in each case, he had a strong ally. His school nurses reviewed his blood sugar numbers with him every day. They reminded him to test when he forgot. They checked with him before gym and sports, and they helped his teachers understand his disease.
I benefited as well. When Danny had a night of high blood sugars, I could call his school nurse and know she'd keep an extra eye on him. If she was worried about his numbers or needed more supplies, she knew she could reach me and that she had my support. Our school nurse became a central part of Danny's medical team.
Over the years, I have spoken to school nurses who have trouble with their parents. "His mother calls many times a day and always thinks I'm doing something wrong." "I ask him for more supplies, but he won't bring them in." "They send her in with cookies and a Snickers bar." or "Their child comes in every day with sky-high blood sugars and they won't do anything about it."
When parents are unhappy, their complaints are different. "My son's school nurse doesn't know a thing about diabetes." "Our school nurse hovers over my daughter. She doesn't let her do anything herself." "I never know which nurse will be in charge or if anyone will be there, so I have to do most everything myself."
It helps to speak to nurses about the parenting experience. I remind them that approximately 20% of parents have full-blown Post Traumatic Stress Disorder during the first year after diagnosis. Many are anxious or depressed; others are financially stressed or exhausted from broken sleep. Some parents cope by worrying and trying to control things, others end up checking out. Mostly, I talk about the need for communication, for compassion, and for building trust. I recommend medical one-page handouts, face-to-face meetings, and a sense of humor.
With parents, I flip the coin. Many school nurses are spending their own money to buy Band-Aids and Kleenex. They eat lunch at their desks with children coughing on them. For a very low salary, they drive madly from one school to the next and stay late to do paperwork. There is very little time to read up on the latest diabetes technology or decide how much responsibility a child should take for his or her care. Still, I recommend the same things: communication, compassion, building trust, informational one-page handouts, face-to-face meetings and a sense of humor.
The benefits are worth it. For parents, a strong, supportive relationship with your school nurse can greatly relieve your anxiety, help to improve your child's A1c, and be your liaison at school. Like a garden, this is a relationship well worth tending.
Tips for Working with Your School Nurse
0 comments - Aug 1, 2009
Diabetes Health is the essential resource for people living with diabetes- both newly diagnosed and experienced as well as the professionals who care for them. We provide balanced expert news and information on living healthfully with diabetes. Each issue includes cutting-edge editorial coverage of new products, research, treatment options, and meaningful lifestyle issues.