California Parents of Children with Diabetes and Care Advocates Hail Isadore Hall, III Legislation to Fight Diabetes

Assembly member Isadore Hall, III Introduces Legislation to Help Diabetic Children in School.

Assistant Speaker pro Tempore Isadore Hall, III (D- Compton) Believes This Law Will Enable Delivery of Insulin to Students Using Trained, Parent Designated Volunteers

| Feb 11, 2010

Sacramento- February 10, 2010 -- Assistant Speaker pro Tempore Isadore Hall, III (D- Compton) today introduced AB 1802, which would clarify existing law by allowing, but not requiring, a parent/guardian-designated teacher, administrator or school employee to administer insulin to a diabetic student while on a school campus.

An estimated 15,000 children in California have diabetes, many of whom attend public schools.

Type 1 diabetic students rely upon daily glucose blood monitoring and insulin injections in order to properly manage their medical disability. Advancements in medical technology along with engaged family members, health care providers and trained volunteers have made daily insulin administration safe and allowed diabetic students to lead healthy and productive lives.

Since 2007, many school districts have implemented successful partnerships to empower parents/guardians, health care providers and volunteers to administer insulin to diabetic students while on a school campus. Unfortunately, due to confusion in state law, some school districts have not implemented this important partnership necessary to keep diabetic children safe and healthy while at school.

 "Too many children in my district and throughout California suffer from diabetes," said Assembly member Hall. "This growing epidemic requires us all to take a more active role in helping these children lead healthy lives. This proposal takes a medically safe, financially responsible team approach to managing diabetes and I am proud to stand up for diabetic children throughout California by introducing this important bill."

 Sponsored by the American Diabetes Association and modeled after successful legislation in Washington State, AB 1802 will provide needed clarity in the law so that parents/guardians, health care providers, teachers, administrators and school employees can work as partners in helping children with diabetes remain healthy and successful in school.

Parents of children with diabetes, the American Diabetes Association, the Disability Rights Education and Defense Fund, Inc. (DREDF) and other diabetes, disability and child health advocates across California are rallying behind legislation introduced today in the California Legislature by Assembly Member Isadore Hall, III (D‐Compton). Hall is a member of the Assembly's Committee on Health and Chair of its Select Committee on Child/Adolescent Health and Safety.   Hall's bill, AB 1802, would establishes a procedure by which a parent or guardian can designate a trained volunteer school employee to administer insulin to a child with diabetes in a public school, based on the medical instructions provided by the child's physician.

"This law will effectively address the dangerous situations currently faced daily by California's school children with diabetes," said Dwight Holing, Secretary‐Treasurer Elect of the American Diabetes Association.   "If passed, this legislation will clarify existing law and help children with diabetes in California public schools to get the care they need and are entitled to under federal and state laws."

"Depriving these children and their parents of an effective solution to this critical health issue is a civil rights problem that can best be solved by the legislators of this state," said James Wood of Reed Smith, LLP, pro bono counsel for the American Diabetes Association. "Assembly Member Hall has done his homework and prepared a model statute that deserves prompt consideration and enactment before more children and families experience the dire consequences of improperly managed diabetes."

High blood glucose levels can impact a student's ability to concentrate and learn. Additionally high blood glucose levels can lead to severe disabling and life‐threatening complications including heart disease and stroke, kidney disease, blindness and amputation of the lower extremities.

According to the bill, approximately 15,000 children in California have diabetes, many of whom attend preschool through 12th grade in the state's public schools. A significant proportion of these children receive insulin by injection or through an insulin pump one or more times each school day, during typical school hours as well as during before and after‐school activities. Many children, especially younger children, are not yet able to administer insulin themselves. Confusion about who can legally administer insulin to a child has hindered the ability of California school districts to meet the medical needs of these children. Assembly Member Hall's legislation empowers parents and provides clear legal authority for these children to get access to care they need.

Assembly Member Hall held hearings across California in 2009 to gather information about what policies schools and school districts have implemented to care for students with diabetes while on campus. Francine Kaufman, M.D., a Board‐certified specialist in pediatric endocrinology and metabolism, Chief Medical Officer and Vice President of Global Medical, Clinical & Health Affairs for Medtronic, and a member and past President of the American Diabetes Association, was among the experts who testified at the hearing and has long supported the appropriateness and safety of using trained volunteers to administer insulin to children with diabetes.

"The very foundation of modern diabetes care is the training of lay people to safely administer insulin," said Dr. Kaufman. "Parents, caregivers and other unlicensed volunteers routinely administer insulin every day. Nothing about this is new; it has become the standard of care of diabetes treatment world over."

It is estimated that half the states in the nation already have laws and/or policies in place that allow volunteer non‐medical school personnel to administer insulin to public school students with diabetes, when school nurses or other health care professionals are not available. In addition, many school districts in California already permit a parent to designate an appropriately trained volunteer to administer medication.

"On so many levels, this legislation makes perfect sense. Not only does it directly address the human and civil rights of children with diabetes, it's also a fiscally responsible solution to an ongoing and pressing problem, regardless of the state's budget status," said Lisa Shenson, the mother of a child with diabetes and grassroots co‐chair of Diabetes in CA Schools. "It's morally, legally and ethically the right thing to do. We truly applaud the efforts of Assembly Member Hall and thank him for his work and commitment to children with diabetes."

About Reed Smith

Reed Smith is a global relationship law firm with more than 1,600 lawyers in 23 offices throughout the United States, Europe, Asia and the Middle East. Founded in 1877, the firm represents leading international businesses from Fortune 100 corporations to mid‐market and emerging enterprises. Its attorneys provide litigation services in multi‐jurisdictional matters and other high stake disputes, deliver regulatory counsel, and execute the full range of strategic domestic and cross‐border transactions. Reed Smith is a preeminent advisor to industries including financial services, life sciences, health care, advertising and media, shipping, international trade and commodities, real estate, manufacturing, and education. For more information, visit reedsmith.com

About the American Diabetes Association

The American Diabetes Association is leading the fight to stop diabetes and its deadly consequences and fighting for those affected by diabetes. The Association funds research to prevent, cure and manage diabetes; delivers services to hundreds of communities; provides objective and credible information; and

gives voice to those denied their rights because of diabetes. Founded in 1940, our mission is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. For more information please call the American Diabetes Association at 1‐800‐DIABETES (1‐800‐342‐2383) or visit http://www.diabetes.org. Information from both these sources is available in English and Spanish.

About DREDF

Founded in 1979 by people with disabilities and parents of children with disabilities, the Disability Rights Education and Defense Fund, Inc. (DREDF) is a national law and policy center dedicated to protecting and advancing the civil rights of people with disabilities through legislation, litigation, advocacy, technical assistance, and education and training of attorneys, advocates, persons with disabilities, and parents of children with disabilities. For more information, please visit www.dredf.org/diabetes

About Assembly member Isadore Hall, III

Isadore Hall, III was elected in November 2008 to represent the 52nd Assembly District that includes Compton, North Long Beach, Paramount, Rancho Dominguez, South Los Angeles, Watts and Willowbrook. Hall currently serves as Assistant Speaker pro Tempore, the third highest ranking member of the California State Assembly. For more information, please visit www.assembly.ca.gov/hall

Nadia Al-Samarrie, Publisher of Diabetes Health expressed concern for families whose parents are often compelled to give up jobs, "to have to stay home from work to manage their child's diabetes care.  We hope that legislation will pass in California and serve as an example to the rest of the Nation that families must receive a solution to the myriad of problems our children face in the schools, especially when nurses are not available on a consistent basis. This is and ought to remain about the interests of the children and the families."

mel@diabeteshealth.com

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Categories: Adolescent Boys, Adolescent Girls, Blood Glucose, Diabetes, Diabetes, Government & Policy, Insulin, Insulin Pumps, Kids & Teens, Type 1 Issues


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Comments

Posted by Anonymous on 23 February 2010

A safer way to secure the health and safety of diabetics and students with other health concerns in the school setting would be to insure that a school RN is available for every student. The liability of administering too much insulin, too little insulin and the resulting consequences for the student should not be the responcibility of educators. Every child deserves a school nurse.

Posted by Anonymous on 23 February 2010

You're going about it all wrong. Introduce a Bill that requires school nurses instead of training lay people in nursing services. This makes sense. Parents, demand Nursing Services for your children, don't expect lay people to be trained in something they were not school in, should I a nurse be trained by a teacher to teach?

Posted by Anonymous on 24 February 2010

The real answer to this problem is to have more school nurses. In New Jersey, there is a state law that says there has to be a nurse in every school. In Pennsylvania, the state law says school nurse to student ratio cannot be greater than 1:1500. California has the worst nurse to student ratio in the nation at 1:2700 on average. Some school districts don't even have a nurse! We would not be having this problem if we had more school nurses. Assembly member Hall, if you really care about the safety and health of our students, why don't you introduce a bill that mandates more school nurses? Wake up ADA and politicians!

Posted by Anonymous on 9 September 2012

My husband has been on insulin since May of 1979. He has no hands so a lot of the work of managing his diabetes falls on my shoulders. My husband has unlimited free bg sticks, unlimited insulin, unlimited sets. reservoirs and sensors and a government-provided insulin pump. We even get a small disability tax credit. Why then am I complaining? There are not enough medical people available to even partially relieve me of the burden of caring for my brain-damaged husband. Type 1 diabetes especially with asymptomatic high and low blood glucose is very difficult to manage. Will a volunteer know that a young child is going low or too high and administer the fast-acting food or insulin? If the student is too unconscious to swallow food can the volunteer administer a glucagon shot? If the child wants to eat too much to get out of the low or too little will the volunteer know that he or she must consume the required amount of food. Unfortunately, even a school nurse may not be aware of how to control blood glucose levels and keep them in the normal range. Fools rush in where angels fear to tread in California, it appears. I agree with the people who say that a trained nurse is essential in the management of type 1 diabetes today.


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